Tuesday, May 13, 2025

A Fabulous FND Webinar

Monday was terrific. Our morning walk with our friends was an hour and a half in the cool fragrant morning air, taking a new trail that led us through absolutely gorgeous mini-pastures in the forest, and massive towering Maples that are spectacularly beautiful because their leaves shine in a light green in the sunlight whereas all the conifers are so dark.

When we returned home, we both wanted to rest, so I got out my reclining chair and set myself up in the sunshine to chill. Sheba lay on the front sidewalk seeing how many gnarly little things she could get stuck in her fur. And then we had a wonderful surprise: Grayson came by.

He is breathtakingly handsome, and he is so easy and pleasant to talk with. I was chuffed that he noticed all I’d done around the yard. He came by to talk with me about the gutters, and some roofing issues. I’m glad he came by because I was able to show him some screws that I have that come with rubber washers and he was happy to see them because he will use them for the gutters. He's coming back this afternoon to work. I can hardly wait. 

When he left, I got started on watering the edible garden and the beds and trees in the front yard. I love feeding my babies, but it takes forever. My strategy for this year is to water the front one day, and the back the next, and then to have a day of not watering. This is the three-day cycle that I expect to use all summer.

Oh my God, I just looked at the weather forecast, and it thrills me to see that there may be rain over the coming few days. I hope it pours!

At 4:30, I participated in a Zoom session with Dr. Alexander Melinyshyn and Dr. Michael Mack, both of whom are neurologists and are respected experts in FND. What an incredible experience it was! We were 138 people participating, and it was exceptionally well run by Migraine Canada. I get migraines, but not like in my teenage years when I’d lose an entire 24-hour day each week to excruciating pain, and then I’d vomit and after that I’d lose another day having deathly deep sleep.

The presentation was mostly about FND. Dr. Melinyshyn was unbelievably knowledgeable, and he’s prepared himself with awesome slides to accompany his presentation. I was gobsmacked by the session. I’ll be talking about it today with Dr. Shoja who was credited by Dr. Melinyshyn for the reduction in the number and severity of my seizures. 

For Beth: I watched a fun movie called Amsterdam. I watched it on Disney (free, with Shaw/Rogers). It’s a timely watch because it concerns a plot in America following WW1 to install an American general, who was a favourite of veterans, as an unelected president. The climax of the movie is a speech the general gives, and it is word-for-word the text of the real speech given to congress by the real general.

It's a movie rich in humour, style, sets and spectacular acting. Christian Bale is the lead and he’s just incredibly believable as an extraordinary character. And Margot Robbie. It took me a while to get over how beautiful she is so that I could see what a good actor she is. And the movie is full of more famous names: Rami Malek, Zoe Saldana, Chris Rock, Michael Shannon, Mathias Schoenaerts, Mike Myers, Anna Taylor-Joy, and … Taylor Swift. It’s oodles of fun to watch.
















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