Tuesday, February 19, 2019

We're Launched!

Okay: I’m done with stuttering and seizure videos. I conclude I stutter far worse than most people on YouTube,  but my seizures are much  milder than most people showing their PNES (seizures).
My final act was posting my own video because all the stutterers I saw were much  more fluent than I am. You can see it here (but it’s really only interesting to other stutterers). I thought people interested in stuttering might be interested to see how challenging speech is for me. It’s my first personal video on YouTube; I also made one about a show at LACMA of magnificent historical clothing. (t's old; I posted is a decade ago (but I like it).
We’re off! Our Selfie project is underway. We’re a big project on a zero budget; I’ve donated money to cover nearly all of the expenses so far (anonymously). My partners meet with the school principal this morning to get all the kids in the school on board.
Now we start crafting to make decorations for the community hall. It’s all so hokey and I’m having an absolute ball—because I’m not responsible. I’ve offered all my left over tissue paper from my dressmaking; the plan is to make huge paper flowers. Hokey! I can hardly wait to start making them.
I picked up pizza to serve Monica and James who came for dinner; I bought dessert and they brought a salad; it was no-effort entertaining. (After the morning meeting I wanted to chill before more company; I did not want to cook.)
I do not know Monica and James; I know their sister who owns a home here but doesn’t live here. They have both just recently moved here.
I’d met them before and like them, but I am nervous with strangers and so I proposed that we play Cribbage. I’ve only played once before, so I learned the rules (and the history) of the game online. It’s derived from an English game called Noddy that dates from the 17thcentury. The man credited with inventing it is Sir John Suckling, a wealthy English poet.
A wealthy poet?!
We had a really comfortable fun evening together. There’s nothing like wine by the fire, fabulous background jazz, excellent pizza and fun conversation. (We didn’t play Crib.)
I casually said to Sheba last evening, “I’ve got to get some wood.” 
She skidded on the kitchen floor, racing so fast to the back door. She must have learned to associate the word, “wood,” with me going out. I tend to tell her where I’m going when I or we go outside. She’s so smart. She also taught herself to self-correct her position in the car to stop the seat-belt alarm from going on where she sits in the car. I love her!
We’ll go for a walk this morning, and then I’m going to start experimenting with making cheesy tissue paper flowers. I can hardly wait.

















Monday, February 18, 2019

Busy Day

Yesterday’s dog walk was one of the finest. There was snow on the ground but it was hard packed, making walking easy. I was so warm I took my coat off and enjoyed the walk beneath absolutely glorious blue sky and bright, sparking sunshine. It was a perfect winter day.
I came home high on the spectacular sunshine. I dropped off Sheba and went into town to have lunch at Robert’sand when I got home, I was quickly into the spa. It was brilliant; the warm water, the sunshine beating down and reflecting off the snow, the gorgeous green of the trees all made for a blissful experience.
This morning I have a Selfie  committee meeting here at 10:30 am after the community dog walk. We’re assembling the kits and today, they and tickets for the party go on sale. It’s rather exciting after so much planning and preliminary work, particularly on my part. But the rest is mostly up to my partners. My remaining task will be to assemble and mount the portraits once they are all received.
And tonight James and Monica, siblings of my friend Paula, are coming for pizza, wine and cribbage.  After weeks of doldrums at Pinecone Park & Spa, today is a busy day.
Also, every day now extends my longest period of life without a seizure since the onset of my symptoms almost three years ago. If I can go six months without a seizure—I have no idea how I can prove that—there’s no danger of me losing my driver’s license.
The bright moonlight made the snow glow last night. It was beautiful. And today will be sunny again. Hooray!

















Sunday, February 17, 2019

Mr. Mellow

I’ve never met anyone who stutters or has psychogenic non-epileptic seizures (PNES). Never. Not one. But I’ve wanted to ever since I clamed down and accepted my condition. I’ve had some quite emotional highs from things I’ve read in the Stuttering Foundation’s magazine that have strengthened my desire to meet others with my symptoms.
Well … I had a taste of what that experience might be like yesterday (in a non-interactive form) by watching a bunch of videos on YouTube that were posted by stutterers and people with PNES. I am definitelynot alone.
It’s 2° outside. I see patches of blue sky and clear signs it will not rain or snow. The big community dog walk this morning will be endurable. Then I come home for another lovely slow quiet day with a roaring fire and my beloved pets.
I’ve been feeling rather high about all the videos I watched yesterday concerning seizures and stuttering. It’s not knowledge gained rather, it’s a lingering emotional mellowing that comes from feeling less weird and not alone.
I’ll have a lovely soak today and just chill like all my winter days.