Thursday, October 31, 2024

Surprise. Benefit of ASL

Well, Wednesday. What can I say? Not much that’s interesting because it was such an unwelcoming day outdoors. We spent all day inside except for our two daily walks. The morning rain did not last, but it spat all day and left everything dripping wet and uninviting.

My right arm is almost useless. The pain is constant. There was a brief time a while back when I thought it was healing, but it got worse again, and I know why. I used it to saw something; it was the wrong thing to do, and that tells me that the only way it is going to heal is if I don’t use it at all. I found a discreet cloth belt in my closet and so now I am using it as a sling because I want to regain painless function of my right arm.

Several years back, I discovered that if I looked into a mirror as I was speaking, I became fluent. Back then, I could also adopt a fake Aussie accent, and I would be fluent. A year ago, however, my speech got worse and neither of those tricks worked for me anymore. Sometimes, I can still do the Aussie thing, but I can’t rely on it as a way of adapting.

The best thing about learning those tricks, is that I shared them with others like me and they found it worked for them—not everyone could use these tricks, but quite a few could, and my sharing of them illustrates the value of support groups for people who, like me, are diagnosed with a malady deemed uncurable and we are left to fend for themselves by the medical system.

Recently, I discovered another ‘trick’ with which to achieve fluency. I have noticed that if I speak while I am signing, I am fluent. It’s as though my brain must focus on what my hands are doing (signing) and not my speech. 

It’s another dark, gloomy and cool day. Sheba goes to the groomer this morning, and Jake comes back to do something he forgot in the stove. Another day to putter and play.
















Wednesday, October 30, 2024

I'm Loving ASL Classes

 It was 1° when I woke up yesterday. A fire was required first thing, and once the house was heating up, Her Highness and I went for our morning walk in cold air and warm sunshine. When we got home, I studied my ASL before going to my class in the library during the noon hour. I’m very pleased with my progress and the classes. I love our teacher, Sandi.

After the class, I did some shopping and then, when I got home, Sheba and I went for a lovely long walk in Elder Ceder. By then, it was a very comfortable 10°. And as we drove home, we could see a dark bank of clouds rolling in.

Henri was here most of the day working on the gardens. He’s going to clean my eaves in places where they need it. He’s doing a good job of husbanding the yard and garden. I am glad to have found him.

Last year, I flew David over to visit during Christmas, and we had a hell of a time together. So, I called Paula yesterday and invited her to come here for the holiday. I have one flight left that I bought years ago on Gulf Island Airlines, and so I offered her the ticket. She’s going to think about it and let me know.

Late yesterday, I heard from Eoin and François. I haven’t seen them or Jay for months, so I was thrilled to be invited to dinner on Saturday.

It’s very mild this morning (9°), but it’s also dark and very, very windy! I hate it when it’s windy. Trees do things they shouldn’t do like fall and bend and sway way too much. Also, wind brings power outages. Our friends have bailed on walking together this morning, so Her Highness and I are on our own.
















Tuesday, October 29, 2024

Dr. Shoja Day

I almost made a comment on Facebook, but I chose not to for fear of what others might say to me in response. What I wanted to do was tell off a person who wrote a post about the experience of a friend of the writer. The writer said that their friend had been “traumatized” by a dog jumping up against her. Their friend, they said, was afraid of dogs. Fair enough.  The person was scared. I get it. But what bothered the person the most was that the dog’ feet were muddy, and their coat got dirty.

What I wanted to write was to suggest that the person not use the word “traumatized’ for something so trivial. I feel that using the T word for experiences that are short of being truly traumatic disrespects people who are dealing with real and serious trauma. 

Yesterday began with a short walk with Sheba because I had an ASL coffee session at Mad Rona’s at 9:30. It was rather great, except that I had a seizure in front of everyone, and I had to leave promptly at 10:30 to get home for my session with Dr. Shoja, during which I had a second seizure. It was a very good session, but it was hard on me. When it was done, I fed the brood and then had a nap. Oh, it felt good to stop and relax.

Yesterday was the second day in a row with two seizures. I’m used to my speech varying over time between better and worse, I guess the same applies to my seizures. And my shoulder is killing me again. Gilda Radner had a character who made many lines famous. One of them was, “It’s always something.”

Dr. Shoja automatically gives me a date for our next session. She doesn’t ask any more if I want to make an appointment, and I wondered if she’d stopped because she was assuming I wanted to keep going, or if she thought I needed it. I can’t believe that I have unlimited access to Dr. Shoja. I can go forever. She said so, because she knew I needed to hear that, but I believe it’s true.

I ama so fucking lucky to have her. Otherwise, where would I go to talk about all the things my body is doing over the past eight years? Change like this requires support, having Dr. S. allows me to enjoy my friendships and not drive any of my friends crazy from me complaining about my symptoms and compromises.

In those early years, I went to church every Sunday, I went to catechism on Wednesdays, and I went to cubs in the church cub pack. I also went to Catholic school for a while but quit, and I was a soloist in the church choir. I loved church, and I loved singing. I embraced Catholicism. It was strongly ingrained in me by choice. I left when puberty hit and when Connie Tyrell had her stroke. But when I had my first panic attack on a ship crossing from England to Belgium and turned to a priest I saw for help. Now I believe I found more love in our parish from the priest and my teachers, than I had at home.  The more I loved being Catholic, the more they loved me.

Through those early years, I talked to God and to our priest in confession. They answered my questions. They consoled me if I cried. I am very glad I had that experience. I’m sure it played a part in helping me grow, and I credit the church for teaching me the values I hold dear. I really took helping your fellow man to heart. I loved that aspect of church culture.

Secular life, once leaving the church was a shock. I’ve never recovered. I’m still appalled by our species.
















Monday, October 28, 2024

I ❤️ Elder Cedar Grove

My morning, as happens every Sunday, began in the Alps. Every Sunday Martijn Doolaard posts a video of his activities on his property high in the Italian Alps. I’ve been watching his videos since he began his project of converting 2 dilapidated and abandoned stone cabins into his home, and I eagerly await each episode. 

Once that was done, and all my morning chores were done, Sheba and I went to walk in the Elder Ceder grove.  Walking in Elder Ceder is now my favourite place to walk because it is completely flat and it’s a decent length. It takes, perhaps, 45 minutes to walk the circuit. And when we came home and got out of the car, I loved the total silence of this island and the faint scent of smoke from my fire which lured me into the coziness of Pinecone Park.

The weather had turned, the sky was dark grey when we got home, and soon it was pouring with rain, so I prepped for my appointment with Dr. Shoja and then had a nap—it was, after all, My Day. And when I got up, the sun was bright, and everything was steaming … and it was raining!

We went for our afternoon walk in sunshine and then came home for the evening.  I lit a nice warm fire and our evening was sublime.

This morning began with a scare. Fred always comes into the bedroom to wake me up at around 6:00. He didn’t this morning, and when I got up and turned on the light, he did not come charging into the bedroom howling for attention. Worse, when I came into the kitchen and turned on those lights, still no Fred. This had never happened.

I searched everywhere in the house, but he was nowhere to be found, so I went outside into the cattery and there he was, clinging to the wall at its top, right up against the ceiling. Something must have been on the outside of the mesh, a bird or a mouse, and he was in killing mode. Fred is a huge personality in our home. I’m extremely fond of him, so I was relieved to find him. 

This morning I’m going to Mad Rona’s coffee shop to practice my ASL with others in my class and some guests, but I can only stay for an hour, then I must come home to Zoom with Dr. Shoja.

Here are some photos of our walk yesterday morning in Elder Ceder grove.


The ground, in places, was covered in Maple. leaves.

The way Ceder bark turns green is beautiful.







Park stewards ensure we don't have to do any wading.






Stepping stones where soon there will be a creek.