Saturday, August 26, 2023

New Old Clothes; Nice Men

Well, it didn’t take long. I’m rockin’ my monologue, so I’m excited about the festival and doing it again now that I have the whole thing down.

Yesterday was a really lovely day because I spent the entire day alone. Clouds rolled in. By midday, there was a thick cover of clouds but no sense of impending rain. Still, I brought all the seat cushions in just in case. When it’s cloudy, it calms me. Sunshine energizes me and I feel I must be outside doing things, but when the clouds roll in, they slow me down. I love to get a book and onto the chaise to read.

The weekend is predicted to be clear and hot, so I’ll likely be busy. Today was a wonderful day of watering, reading and rest. The best part of the day was tidying the guest rooms because Julien and his gal pal are coming to stay Sunday night. It wasn’t the tidying, it was discovering all my old skinny clothes in the guest closet. I tried on about 20 pairs of shorts and pants, and they all fit. I’m thrilled to finally be free of all my fat clothes and back into glorious colour and proper tailoring.

The other nice thing that happened yesterday was when I went next door with a bag of apples for the guys building JorgĂ©’s workshop. It was gifted with some apples, but far too many for me to eat, so I took a bag of them over and met the three construction guys. They were so, so friendly and grateful for the apples. We had a really nice chat and I came home, as so often happens, happy to remember that men can be wonderful.

I grew up afraid of men. They mocked me, belittled me and bullied me. Not often, but enough to make me think men were not worth my time, so it still gives me a thrill to meet genuinely lovely, friendly men. All three guys thanked me using my name. Plus, when I got home, I realized I had spoken fluently with strangers. That’s a big achievement for me.

At 5:30, actual rain. It lasted perhaps 2 minutes, but it was rain.

I listen exclusively to classical music. Prior to the onset of FND, I hardly ever listened to it. But just as FND caused me to become intolerant of city life, changing to classical music happened for the same reason. Sadly, however, CBC radio, which is how I listen to classical music, is all classical music only from 9:00 am to 3:00 pm. Earlier and later, they play the kind of music I listened to all my life—popular music. Weekends are great! There’s Saturday Afternoon at the Opera, Paulo Pietro Paulo for 4 hours every Sunday, and my favourite: Choral Concert.

The norm with classical music, is to introduce each piece by announcing the composer, the musicians by their collective name and soloists by name, the conductor and often the date of the recording and its label. In pop music, the only thing you know is the name of the singer. What a huge difference in terms of respect for creators!

My friend Beth often references the poverty of writers. She means money. But the term “writer” covers a very broad spectrum of behaviors and experience. I was a technical writer—a writer for hire, and I did very well. But not because I was a good writer. I was successful because I was a fast writer. I loved writing, so I’d work all night, weekends, and for weeks at a time. 

The other reason I was successful was that I was a good marketer. By ads and business cards said, under my name: “I’m as good as my competition, but much quicker.” My textbook on professional practices for visual artists made me 100 grand and one very, very generous contract I had lasted 26 years.

But the biggest difference between my experience as a writer, and Beth’s (who writes creative non-fiction), is that I was respected as a technical writer. Successful writers who create stories for public consumption can do very well, but a huge portion of people who think of themselves as writers, don’t. But worse, I don’t think they get much respect based on my own experience.

I self-published my textbook that did so well because I was discouraged by the publishing industry. Once it started selling and I started doing workshops based on the book, publishers were coming to me. The most lucrative offer had me earning about $3.00 or $4.00 per book. By publishing it myself, I earned $17.34 per book, so I rejected both serious offers.

I never thought of myself as a writer. When I started, I thought of myself as a hack for hire, but when I turned 30, I thought of myself as a technical writer. Also, I can write scripts, but I cannot write fiction. Fiction writing is where a lot of the poor writers are.

The two things I loved when I was in school, were art and writing. For many art assignments, I drew letters and words. I even made a few manuscripts and learned calligraphy so that I could create an illuminated version. I aged them with tea, oil and a touch of vinegar. Beth and I share a common origin story. She kept what she called a diary. I kept what I called a journal. It was an illustrated diary, with fabric samples, drawings, photographs, ticket stubs, letters from friends or parts of them, dried flowers, etcetera. Souvenirs of my life and ideas.

Now I blog.

When I was a with the Tyrell’s, I was outside with friends, or alone in my room. I had dinner with them. At first, my room was upstairs on the same floor as them. They were always downstairs on the dining/living room/kitchen floor. Each floor had their own bathroom, so it was living separately. I spent a lot of time during those years, lying inverted on the stairway, peeking down into the kitchen. When I was lying on the stairs, I was lying on a red carpet.

Banning me to my room really was banning me to the top floor of our home. I enjoyed the company of our two cats, Sam and Aleck, and our dog, Jennie. The cats came up with me. Jennie was Don’s dog. After Connie had a stroke, she lived 24/7 in their bedroom, so I moved to the basement where there was a fireplace, and full of bookshelves. I read every book on the shelves. 

So here I am six decades later, on my own, reading every day in a room with a big red living room carpet, and in the company of 2 cats and a dog I adore, and a fireplace. 

And the seasons, they go round and round
And the painted ponies go up and down
We're captive on the carousel of time
We can't return, we can only look
Behind, from where we came
And go round and round and round, 

in the circle game.

~ Circle Game, Joni Mitchell

Today has dawned bright and sunny as predicted, and all the gardens are moist, so I get the entire day to myself. I look forward to a visit to the farmers’ market this morning, reading and napping in the afternoon sunshine, a spa, a dinner with Nancy and Kris at Woodfire.















Friday, August 25, 2023

Just Another Slow Day

Thursday was sunny and lovely and mild. Sheba was not at all inclined to walk, so we had a lovely lazy day together doing very, very little. I did only a little watering, and midday, I really enjoyed a nap in the sunshine. It wasn’t too hot to lie for 45 minutes, basking in the sun’s glorious warmth.

I arranged for a visit from the CAYA technical person. She’s coming next Friday to teach me how to get going on the devices. I can hardly wait for that day to come. After my nap, I went into the village to pick up a prescription and to get some groceries. It was just a slow and lovely day.

And finally, there is rain in the forecast. Next Monday evening and Tuesday, are predicted to be wet. I’ll be grateful for the break from watering my gardens.

I’m not perfect when it comes to doing my monologue. I’m practicing every day now and I’m confident I’ll be in a strong position for the performances. I have 3 weeks until the event.

And I have a date now for my eye surgeries. I’m stoked for these procedures because I believe I’ll have perfect vision. Since I started using eye drops, I have stopped using my reading glasses when I am using my computer. I can’t believe that. And when the surgeries are done, I’s sure I’ll be seeing perfectly because when they do the cataract surgeries, I pay extra to correct my astigmatism. Woo hoo.

Sheba is much better. We walked this morning. And I will have another lovely lazy day all to myself. I’ll read, I’ll nap in the sunshine, and I’ll rehearse my lines, and tonight I’ll watch another movie. I love Kanopy. There are a million interesting movies that I have never heard of for me to watch.















Thursday, August 24, 2023

I ❤️ My Devices!

Wednesday, being cloudy, was a lovely slow day. What a blessing to arise on a day during which the weather does not demand I immediately water the gardens that most require watering. I watered late in the day on Tuesday, so I only had to refresh a few spots during the day.

I cancelled my chiropractor appointment because I feel almost completely recovered. It was scheduled for this coming Friday. I have kept my appointment with Corey the following Monday though, in case he gives me exercises to help strengthen my muscles in my lower back.

When I went to my post box, there was a claim ticket for me from the post office. I was thrilled to discover it was for the rest of my CAYA equipment. The boogie board is absolutely fabulous, I will get a lot of use out of it. And my phone device is here. I have no idea how to use it, but I soon will. I can hardly wait to get it working. 

However, instead of familiarizing myself with all my new equipment and reading the manual that came with them, I started re-rehearsing my lines. I’ve retained a lot, but it’s been 3 months since I have done it, so there were lots of places I was stumped. So, I went through it a few times and it is quickly coming back. I reckon I should do it a few times every day to ensure I get it all back. Our tech rehearsal is on Sept. 14th. I’ve lots of time to get good at it again.

At 3:00, Ali and Pete came by for tea and we had a nice visit. When they left, I lit the fire so that I could enjoy a. nice cozy evening with Sheba, Fred and Ethel. It’s Fred, Ethel and I who love the heat.

I’m glad to be back to memorizing and practicing. It gives me something to do. And although it is going to be expensive, I am glad I will soon have a gardener. If there is a good thing to spend money on, other than food, it’s my garden. Sheba, Fred, Ethel, and over a hundred plants anchor me to Pinecone Park. Soon, for the first time, I’ll be able to walk in my garden and not see only things that need to be done. Plus, I’ll know that all my plant friends will henceforth be better fed.

As part of my work with Bronwyn, we’ll be looking at watering systems. So, I may not have to spend the usual 1.5 hours a day watering by hand next Summer. Instead, every half hour, I’ll move the primary hose to a different connector. The total time investment will be about 10 minutes. And in Dave, I have a partner on wood management. He will help me stack and split my annual wood order. His good company is a bonus. The rest of my time at Pinecone Park will be blissful and far easier on my body.

Even though I am feeling healed, though, I’m a changed man. I know I must be thoughtful about what I do physically, that’s why memorizing is so satisfying. I also have a lot of learning to do on the software I’ll be using to communicate. I particularly love the Boogey Board. It’s extremely practical. What I did not expect, though, was the sense of pride it gives me.

Soon, I will be able to go into a store, walk up to a clerk and push a button that says something like this: “Hello, my name is Chris and I am mute.” Then, I’ll be able to hand the clerk my Boogie Board with a question or statement that states my need. What I love, is this professional way of communicating. I have appropriate devices now, and in my mind, their slick interface subtly shows the world that I have adapted and know how to be mute. I’m less fearful of the world. It’s like I’m wearing a beautiful expensive and perfectly tailored suit. I impress when I present, with my cool tools.

I’m also going to have easy access to a collection of standard prime messages. An example: “I have a seizure disorder. They are psychogenic seizures, not epileptic seizures and I need no assistance, but when it is over, I need a few minutes to feel back to normal.” I will also bank this one: “This is the sign in ASL for seizure. I make this sign to explain the change that overcomes me when I seize.” (I show them the sign.) I also have a telephone system incoming. The parts are here, but I haven’t begun learning how to use them. What I do know, though, is that I’ll have pre-recorded messages to play when using the phone that alerts callers to my challenges with speaking and asks them to phrase questions so that I can answer them with yes, no, or single words.

These devices solve problems, but they also provide confidence and courage. My primary devices will be the Boogey Board and the iPad. They are both small and thin. I have a leather purse on a shoulder strap that they fit into. I am good to go. I’m excited about having something to learn, and it’s come just as I do my monologue for the last time. My next project is finding my technological voice.















Wednesday, August 23, 2023

Comfortably Alone at Home

Tuesday continued the cool (for Summer) spell of weather, but the wind is over after a relentless week of it. And I was feeling mighty good because my sciatica is gone, and Bronwyn, the gardener, and I have sorted out a gardening plan. She will get started on Aug. 31. 

I had errands to do in the morning, and then I started watering all the gardens. I watered on and off all day. It felt very good to be back in my regular routine, although I missed Steve’s company. Ron too Sheba for an afternoon walk. Her foot is healing well. And I had a lovely long luxurious spa. 

François made us homemade ice cream sandwiches for our big gay dinner together, and there were 2 left over. I thanked him for the 2 extra and put them into zip bags in the freezer. Well, yesterday afternoon I went to fetch them to gift them to Ali and Pete, and only one was left. It was half there, melted and disfigured and full of teeth marks.

I also won a big bottle of root beer at our neighbourhood block party, and I intended to also gift it to Ali and Pete. It, however, is gone, so I texted Steve to ask where it was, and he replied that he had taken it to Victoria. He gifted it to Don and Fernando. Sigh.

Last night, I watched Room With a View. I loved the movie when I first saw it, and it was just as enjoyable to watch again. And oh my God, a very young Helen Bonham Carter. What a beauty! And Julian Sands, Rupert Graves, Judi Dench, Maggie Smith, and so many more, all glorious in their younger years. Steve and I watched Enchanted April. It, too, was a wonderful film to re-watch. It is probably my favourite film of all time.

Today, Ali and Pete are coming for tea in the afternoon, so I’m going into the village for some nice biscuits for us to have, but first I’ll take the cripple for a short walk. We may have showers today. It'c cloudy this morning, but the heat returns tomorrow for another visit.