Monday, September 28, 2015
Crack of Dawn Monday
First, I turned in my bed without even mild pain. Now, it is 6:00 am and I have been up for 40 minutes without a single spasm. I have even put laundry in the washing machines and sat and risen a few times. Mind you, I am moving carefully and slowly, still lacking faith in my right leg. But there's no doubt in my mind that full recovery, which I thought of as impossible, is possible. Praise the lord and pass the bacon.
Sunday, September 27, 2015
About the Weekend
Sunday was spent enjoying a surprise visit from my buddy Todd and his son Hudson. They are part of a family I adore. We ate, we walked and we shopped, Todd, Hudson, me and my cane. The weekend is about to end with champagne in the sunshine in my living room followed by dinner with Ross and Pam at Chambar—a great, if a bit young and hip, restaurant.
Saturday involved negotiating pain and being part of setting-up for the graduation reunion that began at 4:30. It was a blast! There was plenty of food, the band (of two) got people dancing and the weather was perfect. It was a truly remarkable time seeing old friends who, for the most part, seem not to have changed.
Saturday involved negotiating pain and being part of setting-up for the graduation reunion that began at 4:30. It was a blast! There was plenty of food, the band (of two) got people dancing and the weather was perfect. It was a truly remarkable time seeing old friends who, for the most part, seem not to have changed.
There was sadness of course, hearing some
stories, remembering people who are no longer with us and seeing one old friend
who appears now to have rather severe MS. Paul is a true gentleman whom I have
adored all my life, and to see him struggle to speak was devastating.
Many people thanked me for my part in
organizing the reunion. I did not anticipate their thanks but their gratitude
helped me see that our party was a real success. In fact, the organization is its own reward. I have a plan to have annual drop-in summer picnics in the summer and periodic lunches to which we will invite all who are interested.
We have had a reunion every ten years but I think we are going to drastically pick up the pace. Those of us who are left and happy want to party.
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| Deborah and I went through elementary school and high school together. We were also in the West Vancouver Boys and Girls Band together. |
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| My co-host, Brian K. |
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| Our own Robert Redford: Bruce M. Sill handsome, warm and wonderful. |
Friday, September 25, 2015
Friday Morning Casualty Report
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| The Fall gardens everywhere are stunning. |
The great news is the weather prediction for our 50th Anniversary High School Reunion on Saturday. My colleagues and I have been planning this event since the Spring, so the weather is our reward. The balconies of the Rowing Club are going to be a very popular place—drinks in hand.
The good news is that I am learning how to move so as to lessen the spasms that terrify me and hurt so incredibly much. I am also capable of sustaining a spasm quietly now; you get better at everything you practice with diligence. I am walking with a cane. That is essential, and I will be checking in my locker for crutches that give me much more stability—I used crutches in the hospital.
Also, I can do just about anything but I do everything as part of a new, slower and intense way of being. I am constantly thinking about where I am going and how to do things. I work to keep my right leg bent to reduce the probability of a spasm with movement.
I am in constant dull pain and have intense periodic spasms. My day is pretty much carrying on whilst in mild pain or stopping and trying to find a position that allows for no pain at all if possible. Nights are brutal. Turning in bed has to be thought through carefully, but I can now get out of bed without inducing a spasm.
I was offered drugs for pain but refused them. I hate them because they make you constipated and lazy and vegetable like.
Next week, I will go to see my doctor if I remain in this condition to know more about what, exactly, is wrong and what the prognosis is. I will take physiotherapy if it will help.
I quit my brand new job teaching at Emily Carr. Why deal with all that whilst dealing with all this pain and trouble? The classes are three hours. No thanks.
Thursday, September 24, 2015
DREADFUL Thursday Morning
UPDATE: The x-rays revealed no bone damage so the good news is that whatever is wrong is "soft tissue." The doctor I saw guessed that I have torn a ligament but I have no recollection of an injury or accident. I am to take it easy and go back next week if I am still having severe spasms of pain.
_ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _
Let's see… I got up at six because I was up late dining with my friend, Robin. Now it is 6:30 and so far I have screamed loud enough to wake my neighbour, cancelled my teaching this term and Emily Carr, terrorized my cat with my crying, screaming and the cane and written for an appointment with my doctor. Something is dreadfully wrong with my right hip and leg.
I learned about referral pain and had spinal surgery once before when my arm went like this. It is a far more inconvenient situation with a leg—and it may actually be my let or hip and not my spine that is the issue.
I have known something was wrong for a long time and I thought: This will either get worse on its own, or better. Well it got worse, far worse, and very suddenly. Thank God I do not have pain when I am sitting up.
You never know what is coming your way!
_ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _
Let's see… I got up at six because I was up late dining with my friend, Robin. Now it is 6:30 and so far I have screamed loud enough to wake my neighbour, cancelled my teaching this term and Emily Carr, terrorized my cat with my crying, screaming and the cane and written for an appointment with my doctor. Something is dreadfully wrong with my right hip and leg.
I learned about referral pain and had spinal surgery once before when my arm went like this. It is a far more inconvenient situation with a leg—and it may actually be my let or hip and not my spine that is the issue.
I have known something was wrong for a long time and I thought: This will either get worse on its own, or better. Well it got worse, far worse, and very suddenly. Thank God I do not have pain when I am sitting up.
You never know what is coming your way!
Wednesday, September 23, 2015
Tuesday Afternoon
Well, using paraffin as an adherent with
which to fasten beads to my lamp doesn’t work. I may try glue after I do some
sewing with the $200 worth of teeny-weeny beads I bought. I learned how much I
love sewing when I was making my costumes last winter so sewing with them makes
far more sense. It is like meditating for me.
•
Boy has their been a shift in my thinking!
In the past, when faced with an entire week without a single engagement
(except, of course, for my weekly lunch with Dwight) I would despair. Now, I am
thrilled to be able to set each days agenda and pace according to my mood and
the weather. I feel that I have adapted well to a life with neither travel nor
a project.
•
Over thirty years ago a man robbed me who
wanted $40. I didn’t have it but in his twisted mind he thought if he was mean
to me that it would materialize. He held a knife to my throat and made me drive
to a place where we could not be seen and because he did that, he was charged
with kidnapping which comes with a far, far worse sentence (25-year minimum)
than robbery or simple assault.
When
I got away, shock held me together until I heard D.’s voice. As soon as I heard
him I fell apart because at a fundamental level, I trust him and love him and I
have just discovered he has cancer. As with the assault, his diagnosis has
taught me how much and how deeply I care for him.
•
To cheer me up, another photo dump:
Tuesday Morning
Tuesday was warm and beautiful. In the morning, I took my second bag of fish back to the aquarium store. I have given them probably sixty fish in the past month. Now it is easier to keep my tank clean with far less biomass in it. Then, I walked the wall. Heaven. And in the evening, I loved eating dinner bathed in brilliant end-of-summer golden sunlight that filled my apartment. And today, Wednesday, has dawned the same. We start Autumn in glory.
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| First I said goodbye to the other half of my heart, Leon. |
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| The clouds lately have made the views breathtaking. |
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| Click on this to enlarge it. It's worth it. |
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| Heliotrope has a unique smell that I am passionate for. My nose is my BFF. |
Tuesday, September 22, 2015
John and Jill
On the weekend I went to a party. John and
Jill were there. They are both younger than I am—they are around fifty years
old, I think. John is an actor singer; he leads a blocal band called Spirit of the West and he is currently
in rehearsal for a show written on which he has collaborated with our mutual
friend Morris Paynch. It is called Waiting
Room. It has a lot of my friends in it. It is a miracle that it is
happening and it is likely going to be extremely powerful.
It’s going to be powerful because John has
Early-Onset Alzheimer’s Disease (E-OA). Jill is earning her sainthood caring
for him. He needs her help or he cannot function. He is already severely challenged
intellectually. All of us who see how Jill cares for John are blessed to be
witness to their love and their way of living with a devastating impact of
E-OA.
It was fascinating to hear how they are running rehearsals. Jill attends every one and will be beside John throughout the run of the show. Everyone including the Arts Club is determined to make this happen, to give John a last kick at the can before the disease takes him away. It is going to make an incredible impact, I suspect, when it opens.
It was fascinating to hear how they are running rehearsals. Jill attends every one and will be beside John throughout the run of the show. Everyone including the Arts Club is determined to make this happen, to give John a last kick at the can before the disease takes him away. It is going to make an incredible impact, I suspect, when it opens.
Jill and I got to into a wonderful
discussion because she, like me, is dealing with the commercialization of an
autobiographical story—she has just completed a workshop of her play about a
woman whose partner develops E-OA. Both of us are authors and subject and both
of us discovered the importance of telling at least one lie in our story so
that we can say that it is not all true to viewers of our work.
Monday, I went for a lovely Autumn walk.
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| There was a parade of tug boats in False Creek for some reason that appealed to the little boy in me. |
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